Chronic Illness-Specific

Virginia Aldape: Nicole's Story: A Book about a Girl with Juvenile Rheumatoid Arthritis. Minneapolis, Lerner Publications, 1996. Eight-year-old Nicole shares her difficulties and triumphs, including the time she skated in the Special Olympics. Ages 5 to 10.

Carol Antoinette: Sugar Was My Best Food. Morton Grove, IL, Albert Whitman and Co., 1998. Adair's true story tells how he learns to cope with having diabetes, from initial diagnosis to his experiences in a special camp for children with diabetes and his daily life in school. Ages 9 to 12.

Thomas Bergman: Places: Children Living With Cerebral Palsy. Milwaukee, Gareth Stevens Children's Books, 1991. Six-year-old Mathias, who was born with cerebral palsy, tells his story in text and black and white photographs. Ages 9 to 12; can be read to younger children.

Alden and Siri Carter: I'm Tougher than Asthma! Morton Grove, IL, Albert Whitman and Co., 1996. Color photographs help Siri tell the true story of what it's like to have asthma. She talks about the things she is allergic to, what she does to prevent attacks, and how she copes with having a chronic illness. Ages 4 to 8.

Charlotte Casterline: The Asthma Attack by Bo B. Bear. New York, Info-All Book Co., 1998. After experiencing an acute attack, Pete and his favorite stuffed animal, Bo B. Bear, learn together how to cope with asthma. The book is written in simple, easy-to-read language young children can understand. Ages 3 to 5.

Michelle Emmert: I'm the Big Sister Now. Morton Grove, IL, Albert Whitman and Co., 1991. Nine-year-old Michelle talks about the hard times and the good times of living with her older sister, Amy, who is severely disabled by cerebral palsy. Ages 7 to 11.

Joan Fassler: Howie Helps Himself. New York, Albert Whitman and Co., 1991. Howie has cerebral palsy and is dependent on other people to help him get around. His goal is to be able to move his wheelchair by himself. Children will be interested to see whether he succeeds. Ages 4 to 8.

Kim Gosselin: Sportsercise: A School Story about Exercise-induced Asthma. Valley Park, MO., JayJo Books, 1997. Justin and Ashley both have asthma. They describe the medication they take to prevent exercise-induced asthma, so they have a chance to compete against a rival team in the school's sportsercise. Ages 6 to 9.

Joshua Grishaw: My Heart Is Full of Wishes. Chatham, NJ, Raintree-Steck Vaughn, 1995. A boy with cystic fibrosis talks about his wishes and hopes. Ages 4 to 8.

Kelly Huegel: Young People and Chronic Illness: True Stories, Help, and Hope. Free Spirit Publications, 1998. Children with hemophilia, asthma, cystic fibrosis, sickle cell anemia, cancer, and spina bifida talk about their lives. Ages 9 to 12.

Miriam Kaufman: Easy for You to Say: Questions and Answers for Teens Living with Chronic Illness or Disability. Toronto, Key Porter Books Ltd., 1995. Teens with illnesses as different as sickle cell anemia, cystic fibrosis, and muscular dystrophy have common concerns. The author answers questions about family relationships, medical issues, and sexuality. Teens to young adult.

Jonathan London: The Lion Who Had Asthma. Morton Grove, IL, Albert Whitman and Co., 1997. Sean loves to pretend. When he has an asthma attack, he pretends he is a pilot and the nebulizer is his pilot's mask. When he is breathing easily again, he pretends he is a lion who can roar. Ages 3 to 6.

Lurlene McDaniel: A Time to Die. Kara is 16. She questions why she was born with cystic fibrosis and worries about her future. An anonymous benefactor comes into her life and promises to grant her one wish. Ages 12 and up.

Linnea Mulder: Sarah and Puffle: A Story for Children about Diabetes. New York, Magination Press, 1992. Sarah dreams that Puffle, her toy lamb, can talk to her, sing, and dance. Puffle helps Sarah understand that although she has diabetes, she can still have a normal, happy life. Ages 4 to 8.

William and Vivian Ostrow: All About Asthma. This is the true story of William and how he felt when he was 8 years old and had his first asthma attack. He talks about how frightening an attack can be, clears up some common misconceptions, and gives tips kids with asthma can use to help them take part in all the things kids like to do. Ages 6 to 10.

Kathy Parkinson: My Sister Rose has Diabetes. New York, Health Press, 1997. The child who is sick isn't the only family member affected by chronic illness. In this story, Rose's brother talks about feeling forgotten when Rose seems to get all the attention. Ages 8 to 12.

Connie White Pirner: Even Little Kids Get Diabetes. Morton Grove, IL, Albert Whitman and Co., 1991. Through wonderful illustrations and simple text a young girl with diabetes talks about symptoms, treatments, and daily living. Ages 3 to 8.

Adapted from: Deborah Rivlin, MA. Bookshelf: Books for children with chronic illnesses.Contemporary Pediatrics. Copyright © 1999 and published by Medical Economics Company at Montvale, NJ 07645-1742. All rights reserved.

The author is Coordinator of the Good Grief Program of Boston Medical Center and Director of The Circle, a bereavement support group for children and their families.

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